Today I met with mom's care team for conference at the rehabilitation facility. Based on all the factors at play and mom's wishes, we will be transitioning to a full care residential hospice facility. We are expected to move sometime next week once all the paperwork is processed and the necessary people can communicate. The past week, I've talked and met with tons of people involved in all aspects of this (doctors, nurses, social workers, physical therapists, occupational therapists, clinical coordinators). I even toured one of the residential hospices this past week which I will talk about in a separate blog entry.
To briefly summarize, mom's physical condition is plateauing/diminishing where the therapists can no longer to help her due to the disease progressing. And due to this, they can no longer work with her and have her stay there. It is completely understandable. They've been great at working with us to decrease the TPN so she's not as uncomfortable from all the fluid buildup in her stomach and legs, and decreased therapy sessions to accommodate her situation.
Over the weekend, my sister will be here and we have a lot to discuss. We have a hospice consult appt. and will also be touring the same hospice I toured this past weekend. It sucks that insurance doesn't cover it but we've decided that money didn't matter. We want mom to have the best care possible no matter the costs and deserves the highest quality of comfort and care. She's always taken care of us ever since we were young and sacrificed so much for us...so it's only fitting that we make her final days be in a beautiful and comforting environment.
We will also be meeting with a chapel near my home to go over final arrangements for when that time comes. It's hard but I want to be prepared. It is what it is. I'm doing what I must do. The end is nearing us and I will not falter now.
Attention family & friends who want to visit mom over the next few weeks. You are more than welcomed to contact me to coordinate. I want mom to be around all those who love her.
I am so very sorry. My mom died of brain cancer in 11/11 and it was the hardest thing to go through. We ended up using hospice in her home. It was still so stressful. Willing be thinking of you and praying for peace.
ReplyDeleteI have been following your story for months now. I am praying for you and your family.
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